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It’s weird having a neurotypical child after a child with Down syndrome. You marvel at how everything comes so easily to them. Rex nurses easily, gains weight and grows easily, holds his head up easily. When he is asleep, he breathes so easily and peacefully, I can barely perceive it. Regina’s chest was always heaving, which, on the plus side, made it easy to tell if she still was breathing or not. Getting Regina walking and talking seems like an insurmountable obstacle RN. She is 21 months old, not very close to walking, and says only a handful of words, not very clearly. She has to communicate mostly by signing. She works hard in PT and ST, though. She will need some custom orthodics for her feet and ankles because the low tone in her feet causes her to pronate. It is overwhelming sometimes. But there was a time when I wasn’t sure she would make it to her first birthday. So, we can take it one day at a time and be grateful. #rexgramWhen you neglect to tell everyone to pull up their socks 🤪 (My mother and sister joined us for this week’s #bassmass !)I hear it is #nicuawarenessmonth . This was the first time I got to hold Regina. They had rushed her to the NICU immediately after birth, and they had to push me on the table I was operated on into the NICU after they had sewn me back together to see her. The NICU is the best place you never want to end up. The nurses there are angels. The neonatologists are damn good at what they do. But for a parent, it is the seventh circle of Hell. You feel torn in two between two places: at home with your other children and at the hospital with your baby. You think you are being a terrible mother to both. You somehow manage to blame yourself for your baby ending up in the NICU, even though you know it is irrational. Your baby’s life suddenly goes from being counted in weeks to being counted in days, because you don’t know how many they will have. 24 days in the NICU. How many days was your sweet babe there? Every NICU mama will know that number forever. You are all in my prayers today, NICU warriors.Rosie was all up in her feelings. Don’t worry, some lunch sorted it all out. 😂 So glad to spend some time with my SIL, who is a rockstar 2nd grade teacher and could answer all of my teaching questions (plus the research and explanations that all went way over my head 🤪). #bassmassDon’t let that smile fool you. This little guy doesn’t like to be put down. EVER. Which is making homeschooling a challenge. I would just babywear, but hauling around this 14 lb baby is absolutely killing my shoulder. Homeschooling is going ok, all things considering. We decided upon Mother of Divine Grace, which I am really loving. BUT! Homeschooling mamas of many, how do you juggle all of the students in different grades? I just have 1st and K and it seems like both of them need me at the same time all the time and they really are on different grade levels, so I can’t really combine the reading or the math especially. Halp! #rexgramThis is the most important #bassmass of them all! Today was Scott’s Rite of Initiation of full communion with the Catholic Church. Yes, the guy with six kids who never missed a Mass on Sunday wasn’t actually Catholic yet. 😂 This is seriously one of the happiest days of my life. 😭 So happy for him and proud of him. And this might seem an odd time to join the Church in the midst of all this turmoil, but he is not Catholic for those wicked bishops’ sake, but for Christ and the Church. And we are with and for Christ despite them! Welcome to the fold, Blackbeard.- Follow Tales from the Mommy Trenches on WordPress.com
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